CEREBRAL PALSY, A CONSEQUENCE?

Maudline dropped off her three children – Gbebe and the twins – at a colleague’s daughter’s tenth birthday party and made a quick dash to the supermarket and squeezed in a hospital visit before returning to the party. In her absence, she could trust Gbebe who was twelve, to keep a watchful eye over her twin girls – Gbayike  and Romoke. Despite Gbebe’s challenges, he was such a darling and very protective of his sisters. He had good communication with them, and they bonded very well together.

First, a little background about Gbebe. Gbebe was born with cerebral palsy at birth after prolonged labour, hence his name which means God heard our plea. His palsy affected his speech, limbs and level of understanding but Maudline had put in a lot of effort to bring him to par with his peers and even much more so with his siblings. He could take care of his personal hygiene and feed himself although his feeding habits were a little sloppy for his age.

At the party, Gbebe had been served with his food and had fed himself. Thereafter, his sisters had ignored the mess and tried to clean him up as best as they could, all the time conversing and laughing with him. Suddenly, they were approached by a girl named Susan,  who walked up to them and asked pointedly “he looks like you both, is he your brother? The twins responded with a nod and a smile and tried to introduce her to Gbebe, but Susan shrank away and quickly, withdrew her hand. She asked blatantly, “why did you bring him along to the party? My cousin has a brother like him, and they all leave him at home when they go out. In fact, if you have never visited their home, you wouldn’t know about him because he is always locked up at home. They say he is very aggressive.

Just then, Maudline arrived to pick up her three jewels (as she often referred to them). On the way home, the twins related their experience with Susan and Maudline immediately counselled the children as follows: “Do not be upset with Sue, she does not know better, and her cousin’s parents have not helped matters. Would she like to be locked up at home and treated like an outcast – I am sure the answer is no. Such treatment can arouse aggression in anybody. We tend to forget that created us all differently according to purpose. You know Gbebe is gifted with playing the drums and guitar and recently won a medal in paracycling. He can also do several other things because we shower him with love and have never given up on him. He was not treated differently from you and displays a high level of independence.”

When Maudline retired to her room, she discussed the event with her husband, Chike, and they agreed to start an enlightenment campaign on Cerebral Palsy by destroying the myths and explaining the facts.

Excerpts from her first article are contained below:

Cerebral Palsy is a condition marked by impaired muscle co-ordination and /or other disabilities and is typically a result of damage to the brain before or at birth. It therefore follows that neither the child nor the parents are responsible for the condition. When we consider that every child is a gift from God, we realise that we should be grateful to God for his gift. He has a purpose for the gift, and it is the responsibility of every parent to help their child realise their God given purpose in life. This can only be done through love and encouragement. Every child thrives in an environment of love which boosts their self confidence and love for humanity. The home must be a haven where they recover from the taunting and daunting challenges they face outside.

As a proud mother of a son with palsy, I can say it takes patience and understanding to help them navigate the challenges they face, but it is filled with gains when you find them achieving the purpose of their creation. They should not elicit shame, pity or embarrassment but rather, God’s name should be glorified.

Psalm 104:25-4-25 reads ” How many are your works, Lord! In wisdom you made them ALL.”

Havilah believes the world would be a better place if we learn to be more accommodating of people with disabilities and treat them with love. We should also teach our children to treat them with respect, dignity and love because, we are all God’s creation.

Love

Havilah